"What an amazing place Shelley Park Neuro Centre is! This is our story and how Shelley Park have helped us as a family, to help our son.

 

Our son was diagnosed with a rare brain disease in 2009 aged 9. He is now 19. He was given a prognosis of 2 years to live, but with all we have done for him he is thankfully still with us. We as a family have done most things on our own for him  for years till we finally got awarded CHC funding. The disabled world isnt an easy one to live in! He has complex needs ranging from poor vision, to speech impediment, to loss of mobility, coordination, motor skills etc, he is 24/7 care.

 

He is now struggling with the world around him, he wants to be independent of his family but doesn't know how to, he is suffering with depression, anxiety and is very lost and frustrated  and this has resulted in him  taking it out on his nearest and dearest. He was getting very violent towards us, lashing out, and very distressed.

 

We were getting very desperate at home of how to try to help him and it is so painful as a mother to watch him suffer. He was giving up on life, refusing to eat, drink even sleep! we have been beside ourselves with worry, so I started to research who could possibly help us, and I found Shelley Park.

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I called and explained the situation and was told that someone would call me back. Which Sam did, and I thank my lucky starts he said he could help us!

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So our son now is under the care of Shelley Park, living in one of their bungalows, he has a personalised care plan, he is eating, drinking and sleeping. The three things he does not do when he is unhappy. Shelley Park are basically rehabilitating him, teaching him the life skills he needs, assisting him in every day life, and helping him now to carve out a future for himself, together with therapy sessions, everything he needs to help him deal with whats happened to him and to look forward to his future, and to accept his condition and move on.

 

As a mother its been very hard letting go, as I've always done everything for him, but I can honestly say I'll rest easy knowing he is being looked after and being treated so well. Its a process we are all going through as a family,  I can honestly say I am so relieved in finding Shelley Park as I literally did not know which way to turn. The weight has been lifted, and they are even helping get him a decent wheelchair which I have always struggled to get him. Everything has been a up hill battle till now!

 

The staff are absolutely amazing! I've met most of them now, they are all so friendly yet professional, caring and understanding. The staff I have met all love working for Shelley Park which I found very comforting, and they all say what an amazing place it is. And it is!

 

Thank you all, you are all amazing people."

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